Traumatic Brain Injury: Resources, Information, & Support

General Information about Brain Injuries:

Brain Injury Association of America (BIAA): BIAA was founded by a group of individuals who wanted to improve the quality of life of their loved ones. BIAA acts as a clearinghouse of community service information and resources, facilitates prevention awareness, hosts educational programs and encourages research.

Medline Plus: MedlinePlus combines the resources of the National Library of Medicine and the National Institutes of Health to provide authoritative information on over 700 diseases and medical conditions. The site also provides lists of physicians and hospitals, a medical encyclopedia and dictionary, and information on prescription and non-prescription drugs.

Oklahoma State Department of Health: General information about head injuries and Oklahoma resources. Produced by the Oklahoma State Department of Health, the site provides information on the effects a person may feel after experiencing a brain injury and gives Oklahoma links for those who have suffered an injury.

University of North Dakota - Center for Rural Health: Information on traumatic brain injury: North Dakota site with general information on brain injuries as well as links to related resources.

Brain Injury Association of New York: The Brain Injury Association of New York is a group committed to helping those who have suffered a brain injury to identify strategies and new recovery techniques for a stronger recovery.

International Brain Injury Association: IBIA aids the collaboration of medical professionals and advocates of brain injury prevention and long-term care issues.

Brain Injury Recovery Network: Non profit organization dedicated to helping victims and families of brain injured individuals. Site provides information on legal and medical advice as well as links to general information on brain injuries.

ABLEDATA - Brain Injury and Stroke Resource Center: Provides information on assistive technology and rehabilitation equipment available to consumers, organizations, professionals, and caregivers within the United States. Provides links to stroke and brain injury organizations.

Brain Injury Resource Foundation: The Brain Injury Resource Foundation provides education, advocacy and support for people affected by brain injuries. The website provides articles covering key legal issues that arise when a loved one has suffered brain injury.

National Association of State Head Injury Administrators: Source of information and education for state agency employees responsible for public brain injury policies, programs, and services.

Financial Issues/Disability Income:

Public Resources: Disability Income – Federal Programs

Social Security Disability Insurance: Largest of several federal programs that provide assistance to people with disabilities. Only individuals who have a disability and meet medical criteria may qualify for benefits of the program.

Supplemental Security Income: SSI is a federal income supplement program funded by general tax revenues (not Social Security taxes) that is designed to help aged, blind, and disabled people who have little or no income.

Medicare Services: Official government website for people with Medicare. Provides information on different plans, enrollment and billing.

Medicaid Services (in CA, called MediCal): Gives an overview of the state run program as well as specific requirements and eligibility.

Public Resources: Disability Income – State Programs

FreeAdvice.com - State Disability Programs FAQ: Free Advice FAQ on state disability programs.

CCH Business Owner’s Toolkit: Website for employers to learn about their disability insurance responsibilities.

Wikipedia: General information on employer disability insurance.

Private Resources – Health, Housing, Independent Living

Health Care Association of New Jersey: Non-profit trade association dedicated to improving long term health care in New Jersey.

New York Health Facilities Association: Organization of over 250 licensed nursing facilities committed to improving long term care in New York.

National Council on Independent Living: A grassroots organization run by and for people with disabilities.

Virtual CIL: State-by-state directory of independent living centers.

Health Issues/Medical Care/Long Term Care/Health Benefits:

Public Resources: Health and Benefits – Federal Program

Medicare Services: Official government website for people with Medicare. Provides information on different plans, enrollment and billing.

Public Resources: Health and Benefits – State Programs

Medicaid Services (in CA, called MediCal): Gives an overview of the state run program as well as specific requirements and eligibility.

State Medicaid Programs: This site provides specific descriptions, regulations and plans for each individual state.

Housing Issues:

Public Resources: Housing – Federal Programs

HUD/Fair Housing & Equal Opportunity - Disability Rights & Resources: Answers frequently asked questions on the housing rights of people with disabilities and the responsibilities of housing providers and building and design professionals under federal law.

HUD Housing and Accessibility Resources: Information about buying, renting and making your home accessible and about fair housing rights.

Public Resources: Housing – State Programs

U.S. Department of Housing & Urban Development (HUD): Local HUD information about homes and communities by state.

Fair Housing and the Law

Americans with Disabilities Act: Explanation of the Americans with Disabilities Act and how it affects disabled people. Contains resources, frequently asked questions and information on state and local governments.

Disabilityresources.org: Organization whose goal is promote and improve awareness, availability and accessibility of information for those with disabilities.

Brain Injury Resource Center: Clearinghouse for brain injury resources, including information on national and international housing communities for the brain injured.

Back to Work Issues:

Resources: Employment

Social Security Online - The Work Site: Offers SSA Disability beneficiaries services needed to return successfully to work.

Job Accommodation Network: Job accommodations for people with brain injuries. A site designed to help employers determine effective accommodations and comply with the Americans with Disabilities Act (ADA).

Other Legal Issues:

Rights of the Disabled:

U.S. Department of Justice Guide to Disability Rights Laws: Government overview of the rights provided by the different disabilities rights laws enacted by Congress.

Resources: Legal Guardianship

Brain Injury Resource Foundation: The Brain Injury Resource Foundation provides education, advocacy and support for people affected by brain injuries. The website provides articles covering key legal issues that arise when a loved one has suffered brain injury, including guardianship.

Resources: Estate Planning

National Information Center for Children & Youth with Disabilities – Estate Planning: Provides an overview of the issues involved in estate planning for children with disabilities and insight on how to plan properly and effectively for their future.

Resources: Personal Injury/Med Mal Lawsuits

Personal Injury Statute of Limitations: All states have different statutes of limitations (time limit on when you have to file a lawsuit). Determining the statute of limitation for your state should be one of the first things you do.

Attorney Pages: Provides a listing of experienced attorneys, organized by practice area (personal injury, for example) and state. Look here to find a qualified personal injury lawyer or medical malpractice lawyer in your area.